Support for omphalocele families
Our Mission:
O Warrior helps families affected by an omphalocele diagnosis by being their destination for support, resources, education and awareness.
Introducing the first-ever community-funded research grant for omphaloceles
O Warrior has partnered with Boston Children’s Hospital for a bold, high-impact study on the treatment of omphaloceles. This grant is not just funding research, it is funding HOPE. It proves that when our community unites, we can drive medical innovation from the ground up.
Click for more information!
Omphalocele Awareness Day: January 31, 2026
Omphalocele Awareness Day is January 31 every year. For the entire month of January, O Warrior and the omphalocele community spread awareness about the omphalocele diagnosis. In addition to awareness, we focus on sharing educational resources and supporting other families and individuals. Lastly, we also use this time to celebrate our O Warriors and all they have overcome and accomplished - at all stages of their journeys.
Click the button below to find some of the initiatives O Warrior is taking this January to celebrate Omphalocele Awareness Day.
A safe landing place when things feel unknown.
We know you’re unsure, but we’re here to support you and your family. We’ve been in your shoes before: googled everything, asked all the questions, and looked at all the statistics. We’re here to hold your hand, hug you, and help how we can.
Are you a family member or friend of an O Warrior?
Having a baby is an expensive life step for any family, but when diagnosed with an omphalocele there are a lot of unexpected costs from a specialized car seat to extra child care.